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Ty’s Story, a Rare Disease Patient

Ty’s Story, a Rare Disease Patient

by Emma Scalzo | May 31, 2022 | Patient, Stories

There are 7,000 rare diseases affecting 25 – 30 million Americans, many of which are children just like Ty.

Meet Beth, the Patient

Meet Beth, the Patient

by Emma Scalzo | Feb 14, 2022 | Patient, Stories

Beth’s story is a case study of what one patient advocate can do!

Meet Cathy, the Patient Advocate

Meet Cathy, the Patient Advocate

by julies | Nov 18, 2021 | Patient, Stories

Cathy Teal is the Executive Director of the FAIR Foundation.

Meet Emily, the patient

Meet Emily, the patient

by julies | Sep 21, 2021 | Patient, Stories

My name is Emily, and this is my experience with Ankylosing Spondylitis (AS).

Meet Sara and her care team at the Arthritis Center

Meet Sara and her care team at the Arthritis Center

by julies | Sep 12, 2021 | Patient

Sara is infuriated that she can’t get the medicine prescribed to her, when she needs it most, from the doctor she trusts.

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ourstoriesrx OurStoriesRx @ourstoriesrx ·
29 Jun

β€œThere is no longer negotiation between the pharmacy and the insurance company. The insurance company tells the pharmacy what they're going to pay, they tell the patient what pharmacy they can go to."

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ourstoriesrx OurStoriesRx @ourstoriesrx ·
26 Jun

Thank you to the @Commpharmacy team for providing fantastic #PBM Reform resources!

Learn more: https://ncpa.org/pbm-reform

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Our Stories Rx is a storytelling project that brings together patient advocates, community clinicians, independent pharmacists, and local employers who are being harmed by predatory pharmaceutical benefit management practices that drive up costs for patients and create worse healthcare outcomes.

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